Wednesday, September 13, 2017

Sick Girl Check In.

Hello all!

If you remember from my last post (if you do not or just haven't read it, do some back tracking HERE), I was in the process of being tested for Celiac disease. That was an entirely new experience because I've never been in a hospital for an actual procedure. Like, they gave me an IV, put me under and everything.
But, my gastroenterologist did an endoscopy (stuck a camera down my throat and into my stomach and small intestines) to see if I had Celiac just like my mom. I kid you not, EVERYONE was shocked when my results, both from the endoscopy and bloodwork, came back negative. 2 doctors and one physicians assistant were kind of baffled. Sydni (my PA) said if I had just told her all the symptoms I'd been having she would have hands down diagnosed me with Celiac...but turns out we were all wrong.
To be honest, I was actually kind of crossing my fingers and hoping that that would be it. If it was something like just removing gluten containing items from my diet I was ready to jump on that train if it meant feeling better than I have been for the last 7 and a half months. However there was a part of me that would have been completely surprised had that been it since I had done gluten free for the majority of my cleanse, which lasted a month and a half, and nothing changed, and I never felt worse after having eaten anything containing gluten.

Basically I found myself back at square one. I really wish I could paint you a word picture as to just how frustrating that was. My nutritionist sent me for some more blood tests to see if I had made any progress, but that was a few weeks ago and I still haven't heard from them or called them to make an appt. That's how frustrated I was. I had spent my entire summer putting my body through something so rigorous as the cleanse I did and it did nothing.
But then my mom reminded me that at the beginning of summer I couldn't hardly get out of bed and that over the course of 5 months I only went out a handful of times. Literally, we could count on one hand the amount of times I went out and did something...it was 5. As someone who has a full schedule almost every week that was pretty much a shock. That's how my mom knew something was incredibly wrong. Now I do however feel a bit perkier and more able to go an do things. Still tired, nauseous, dizzy, and short of breath almost 24/7, but I push past it and do things.

So amidst all my frustrations of feeling like I wasted my time (when I really didn't...I just tend to be overdramatic even when I don't mean to be) I knew I needed to make an appointment to see my regular physician (Dr. Everyday) , even though I really didn't want to. He specializes in internal medicine and I knew he'd have a thing or two to say about a cleanse and naturopathic remedies for being sick.
But, while I was sitting on my bed, avoiding making this phone call, they actually called me. The nurse wanted me to set up a 6 month checkup from when I'd seen him in the beginning of the year. I took this as a sign and that I HAD to see him now.
Last Monday was when I saw him...and I was right. He called all the stuff that I'd done over the summer a bunch of hooey and that I should've come to him sooner. Insert eyeroll.
Yeah Doc, I got it. You know all and I know nothing.
I really only agreed to go and see him so that I could get a referral to a rheumatologist because that's who Sydni told me I should see since she was positive that I had some kind of autoimmune disease. He told me no, that they probably wouldn't even see me because he was certain I did not have one, but since someone else already brought it up he would run a couple blood tests to show me(he was right...they all came back negative). Then he started talking about how what he did for me at the beginning of the year had helped...because apparently I had said it did (I did not) so he wanted me on an inhaler and to see a pulmonary specialist(lung doctor).
My appointment is Monday. This will be my 7th or 8th doctor of the year. Pretty impressive right?
My doctor supposedly thinks that I have inflammation of my breathing tract and a pulmonary specialist will help confirm that. That sounds like such a simple explanation considering all the different symptoms I've had, but he said that getting that treated would clear up my headaches, nausea, dizzyness, and the swelling in my throat.
We'll see.
I pretty much feel like Dr. Lung Specialist is going to tell me something different, but hey, I've been wrong once or twice before.

I'm still wildly tired of doctor appointments, being told different diagnoses, feeling sick, and not being able to do the things that I used to do, but I am trying to keep a positive attitude. There is literally nothing I can do to change my situation EXCEPT to rely on the doctors that keep giving me different answers. So I have to just accept that for now. Until I have more answers I will just keep praying for positive results, working my business, and planning for my future, cause there will be an end to all this eventually right? Of course, right😄
 
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